Synopsis...

...Since I haven't written in a few months, I thought I would just do a little synopsis of what has been going on ...

April -

1st: School

3rd: School

4th: Physical Therapy/Occupational Therapy (PT/OT)

7th:PT/OT

8th: School-left early for Dental appt. for Nile and Noah...teeth fine. Noah has soft spot on one of his back molars, have to keep an eye on it. Made appointment to have the boys back teeth sealed.

10th: School for Noah/Spina Bifida Clinic for Nile

11th:PT/OT

11th,12th,13th,14th,15th: "All Hands" in Corpus for Ken.

15th: School

16th: PreOp for Nile's MRI

17th: MRI for Nile/School for Noah but he didn't want to go because he was upset about Nile's "Dr. appt."

21st: checkup appointment for all of the kiddos.

22: Dental appointment for Nile and Noah - Noah had two teeth sealed before the gas started to wear off. Dr. advised they could not work on Nile due to his "health issues" without a clearance from his pediatrician. Made another appointment for Noah's other teeth.

23rd:PreOp for Nile's surgery. This was a six hour appointment, not including the drive time. One way is 45minutes on a good traffic day. I was very impressed with Nile this day. He did extremely well considering all of the time we spent just waiting to see the doctors.

24th:School

25th: PT/OT

26th: Lela comes down to watch the kiddos during Nile's surgery.

28th: Surgery on Niles feet. All goes well, but he has to stay overnite for observation due to his sleep apnea.* His feet are casted with split casts that will come off in a week and regular casts put on. He does very well that night. I packed some new blocks that I got him just for the hospital, and his Gramms got him some new Army men as well. So we spend much of the evening playing on the floor ( I put a blanket down) playing and building. The next morning we went down to the cafeteria to get breakfast. Nile got to chose anything he wanted. Even if it wasn't Organic. LOL
*I put an asterix here because I do not believe Nile has Sleep Apnea. He has been tested at a Sleep Apnea lab and they diagnosed him with a mild form but they did not actually observe him sleeping. They hooked up a bunch of monitors to him and kept track of his oxygen/heart rate/etc... My opinion on the subject is his tonsils are getting in the way of his breathing. He doesn't stop breathing, there's just nothing gettin in there. His tonsils are so swollen most of the time, he just can't breathe. He can''t sleep on his back because they block the back of his throat, so he sleeps slightly sitting up. So, he has an appt with a different ENT next week and we will see about getting his tonsils out.

29th: Nile released from Hospital

May -

1st:School

2nd: PT/OT

5th: PT/no OT

6th: School

8th: School Field Trip to the Fire Department. It was so fun! The boys loved it!/Followup appt. with Orthopedic Surgeon to check on Niles feet and be recasted. He wanted Red but they were out. Then he picked blue...out. So we went with green. The Techs were calling him the Green Machine. LOL

12th: PT/OT

13th: School

14th: Radiology Appt for Nile's Ultrasound

15th: School

17th: Beach to Bay run for Ken in Corpus... The boys and I stayed home cause they were sick.

19th: PT/OT for Nile and Dental appt. for Noah

20th: School

21st: Followup with Urology for Nile

22nd: School

23rd: PT/OT

27th: Last day of School for the boys. The 29th was actually the last day, but they were having water games and a jumpy thing and Nile still had his casts on so we went to the Whitte Museum instead. We had such a good time.

30th: PT/OT

June:

2nd: PT/OT every Monday and Friday

3rd: Dental appt for Noah

5th: Nile's cast removed. There were several pressure sores on his feet that needed to heal. He still has one on his heel that has not healed.

6th: PT/OT Mom is admitted into the hospital. They advise her that she has Legionaires disease and possibly a mass on her heart. After several days, and several tests later, they advise her that she does not have Legionaires disease nor a mass on her heart. She will get a second opinion from a specialist in Houston later.

13th: PT/OT then head to Lela's house in Houston. Mom has a dr's appt with a heart specialist on Monday.

16th: Still in Houston. Mom has appt and dr. advises that her heart is fine. Whoo-hoo!

25: Dr. appt. with the pediatrician to check on the pressure sore on Nile's heal. Dr. advised that it is fine and should heal soon. One of the problems that we face with his feet is that he doesn't have "normal" circulation down there, so sores/cuts take longer to heal. Much like a diabetics feet/legs.

27th: Appt with the new Orthotist to be fitted for RGO's

30th: Court date over Dusty (my mom's dog) A neighbor has complained that he is barking all day...which is a crock.

July:

No PT/OT till second week of the month due to the 4th of July holiday. Whoo-hoo!

10th: Apptment for me in the A.M. then Dr. appt with a new Orthopedic surgeon to get second opinion on Nile's feet.

23rd: Dr appt for Nile with a new ENT

24th:Lola goes to the Vet and James & Jonah have their 9mo checkup

So that is what's been going on. In between those busy days above, we have managed to make a few trips to Sea World, extend the back deck and Ken has done alot of work on the Duplex for our new renters. So...that's it for now. I'll try to post some new pics and do another real update later. Right now I have to wash some grape tomatoes for Noah to munch on.

Shalom